What an adventure the last 6 weeks have been. I am still in major discovery mode (or sleuthing as my hubby calls it). I am learning a ton and it’s a whole new place of self-discovery, trust, and health that I wasn’t planning on diving into but Life had other plans. 🙂
My MRI with an epilepsy protocol was normal/clear and my EEG was mostly normal showing no epilepsy with one part abnormal but they didn’t really know the cause. In layperson terms it showed that randomly my left hemisphere had slower brain waves and it happened occasionally on the right too.
To keep my sense of humor up I joke that I’m on the way to enlightenment Hahah! Plato, Socrates, Caroline Myss, Teresa of Avila, and others all have had seizures. Maybe all of my neurons fired at the same time to do a massive re-wire. 😉 Or maybe…it was an environmental toxin.
That is where my research and intuition has lead me: MOLD! Quick Snapshot: I watched Dave Asprey’s movie: MOLDY for free the week it came out. It inspired me to have someone come out and do some testing because I noticed water and a musty smell underneath our kitchen sink. I couldn’t figure out where it was coming from. I kept wiping the water up and had a plumber check it out along with the water filter guy. When the tests came back there were lower levels of aspergillus and penicillin. It didn’t seem like we had a big issue. I know some people have crazy high numbers.
Mold can start growing within a day or two and from what I later found out there was an undetected leak that was causing way more mold to grow. My guess is the leak started around September-ish. If you remember from my last post, I had my first so called “neurological issues or partial seizure as some call them” on October 21st (noted in my journal).
Fast forward to July 30th…My son and my Mom and I are “glamping”. I smelled mold as soon as I walked in but I didn’t think much about it. We were only going to be there for a night. Not a big deal right? Then, my Mom woke up to me having a seizure at 4 am. Coincidence? I don’t think so.
Soon as I made some of these connections I called a company to come and remediate our kitchen asap. They started it last week. They thought it would be a simple project, but when they opened it all up they realized it was bigger than anticipated. There was a bunch of mold that was black in a various places (I saw pictures). It was definitely hiding because you couldn’t see it and when I asked people if they could smell it most said they couldn’t. I must have a more sensitive nose (which might mean that I am more sensitive to mold – around 28% of the population is – according to Asprey).
After they remediated they did a clearance test and it passed but the test showed a trace of stachybotrys (black) mold, that wasn’t there on the initial test. Black mold off gases are the most toxic. Sometimes air/swab testing can miss these mold/mycotoxins. A red flag went up for me even though it was trace levels because it meant that it was hiding back there all this time and probably giving off neurotoxins that are obviously very harmful for the brain.
My hunch is that on a low level (or not so low) I was exposed to the mold the most because I’m in the kitchen a lot throughout the day cooking/cleaning/prepping. I think the last 10 months along with the moldy tent (along with a few other variables) pushed me over the edge and I hit my seizure threshold. And…interestingly, there is a connection with low thyroid/ hormone function and mold.
To quote Dave Asprey (who clearly has optimized his brain and body and doesn’t have the issues he used to have): My history of mold exposure provided an opportunity for me to learn more about biohacking than I originally wanted to. When I began biohacking and had my hormone levels tested, I discovered that I had thyroid, adrenal, testosterone, and estrogen problems. I was even diagnosed with Hashimoto’s disease, a condition which the immune system attacks the thyroid gland. In my case, either mold or gluten or both triggered Hashimoto’s, as mold makes your immune system more sensitive to the damaging effects of gluten.
Fascinating! I have been gluten free for the last 7 years but before that I grew up on gluten. In regards to the mold, there have been at least 5 places in the last 15 years that were suspect and 2 from my childhood. Oh, and btw, I might not have Hashimoto’s. My acupuncturist and naturopath say YES! and my functional environment doctor and neurologist say NO! The tests do reveal my thyroid isn’t functionally optimally but I’m currently gonna go with No Hashimoto’s and I will still get regular testing and probably do yearly ultrasounds to ensure I stay within the optimal range.
This whole thing has been an experiment in trusting myself and following my intuition. I’m incredibly blessed to have access to such amazing experts with lots of wisdom and at the end of the day, I am the one who resides in this body. I must trust what resonates and what doesn’t, while remaining opening and willing to learn new things from brilliant people who are clearly masters in their selected domain. But, there are many pieces – mind, body, heart and spirit that are involved. I have the ability to rise up and see the whole picture and integrate, flow and know the right path for me.
What’s next? Our kitchen is still being remediated. I chose to do a more detailed testing before we re-built it to be 100% sure we got all the mold out. We did a few more swab samples and a dust sample (similar to the ERMI test which Ritchie Shoemaker recommends). I also did a mycotoxin test urine test to see what extent my body has detoxed the neurotoxins. My local doc is a functional/integrative doctor with an emphasis on an environmental issues so he will be guiding me on the next part of my mold detoxing protocol which is awesome!
These are some of the resources I found helpful:
How your house can make you weak
Surving Mold by Ritche Shoemaker
Tox-Sick by Suzanne Somer
Thank you all so much for the love and light that you’ve shared with me. Know that I’ve been deeply touched and even though I’m not blogging/emailing much these days your words have been a healing balm that has brought tears of connection and love to my eyes. #grateful
I hope this was helpful for you or maybe someone you know.
Virtual hugs, happy healing dances and love! ❤
P.S. The awesome woman who helped me with E for ~10 hours every week for the last 2.5 years moved last month. And, I don’t live close to family, so most of my alone time is dedicated to my blissiplines (nutrition/meditation/exercise/rest/etc.) I will share more as more space opens up. There is still so much more I want to share about the mental/emotional/spiritual healing that is unfolding as well. 🙂